I feel like I really don’t have a bunch to share which is actually a good thing I guess. Things have improved a lot since I initially began the new drug and I’m pretty much back to what I consider my new normal. I still deal with random days of just feeling wiped out and the muscles don’t always like to cooperate to their fullest, but it’s leagues better than several months ago.
I had my first scan since switching drugs and according to the doc there’s nothing going on to worry about. The spot from last time is gone and there is a new tiny one, but he said that’s something we can see from time to time… as long as they aren’t growing or multiplying we are staying on the current course. So here’s to several years with the new pills.
As we are approaching fall I’m starting to toss around some fundraising again but not really sure what I want to get in to. I am working with the American Lung Association as I was able to connect with someone here in Harrisburg (our local chapter) and this year I am trying to pull together a team for their Lung Force walk. The group that gathered last year was amazing and we had a fun day… and what little I’m seeing, this walk looks bigger and better! I know we still have some time but I really would love to be the top team at this walk and I can’t do that alone! If you’re interested in joining us please do not hesitate to sign up! As I learn more about the details of the walk I’ll be sure to share them — but I’ve already seen notes pertaining to a breakfast for the top team… WHAT?!?!?! 🙂 Here’s the link for my page where you can sign up or donate:
http://action.lung.org/goto/JessicaDKamp
Those who donated and helped with my efforts outside of the walk last year I wanted to let you know that the fund through LUNGevity is doing amazing and we are very close to fully funding our first three research grants. That means we have almost raised $600,000 total as a patient- driven group. If I plan any additional fundraising this year it will be sent to this fund again to help us understand why immunotherapy doesn’t seem to work well with ALK patients and other ways to address the body’s resistance to available targeted therapies. You’re still able to donate to this fund here at any time!
I think that’s all I really have at the moment but please stay tuned as I may try and plan something – even if it’s just an excuse to gather friends and family for a few hours of laughs. Thanks for checking in! 🙂
The Wrong Lottery 
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