5 Weeks

It’s been 5 weeks of ups and downs. 5 weeks of new habits. 5 weeks of new struggles. 5 weeks since I officially started my new drug. Thankfully things have improved since week 1 because I wasn’t sure I was going to be able to handle the side effects much longer. The side effects should be rewritten, more along the lines of:

You will experience the worst constipation of your life so you might as well make friends with Miralax yesterday. There’s a very good possibility you will feel like you were run over by a truck and then picked up and dropped off a cliff so pregame with extra-strength Tylenol. Those with fair complexion will want to dig a cave because any direct contact with sunlight will result in spontaneous ignition of exposed skin.

🙂 everyone that told me it will get better was right! I feel less like roadkill and more like out-of-shape grandma. I’m still avoiding the sun as much as possible, investing in UPF clothing and stockpiling sunscreen so I can still enjoy some fresh air between raindrops. The liver counts that were slightly elevated two weeks ago are back in normal range, which is fantastic news!!! I wasn’t ready to take a drug holiday just yet!

Now that we are closing in on the end of the school year I’m slowly brainstorming ways to keep the kid entertained this summer. Him and I are going to skip town after school ends and spend some time with friends in Raleigh. That should be a nice trip with kids to play with the monkey and adults to pamper me more than I deserve (we have such awesome hosts down there!) I really hope I continue to feel better and gain my muscle energy back so I can enjoy my summer full of activities. It was a bit stressful the think I’d be spending a lot of time sitting on benches watching the fun from the sidelines. I still think that’ll be more common than not but hopefully it won’t be all the time. Walking around Philly yesterday showed me that even though I may not ache 24/7, my legs still only had so much to give and fought me as we walked from 30th street station to Penn. Regardless, I’m gonna keep pushing as much as I can because I think Wyatt is tall enough to ride all the coasters at Hershey now and I know I want to ride some with him this year before he realizes how scary they really are!!

Every day is an adventure, right?!? Onward we go!